EDUCATIONAL PROGRAM FOR SELF-MANAGEMENT ON ADOLESCENTS WITH SPINA BIFIDA: WHAT DO YOUTHS AND THEIR CAREGIVERS HAVE TO SAY?
DOI:
https://doi.org/10.5380/ce.v24i0.62222Keywords:
Program, Education, Adolescents, Chronic Illness, Self-Management.Abstract
Objective: To evaluate an educational program and its effects on self-management skills, from the perspective of youths and their parents/caregivers.
Method: The present study conducted interviews in focus groups with 51 youths with spina bifida (10-18 years old) who participated in the program and 30 parents/caregivers.
Results: Improvements were observed in the youths’ self-management skills, who displayed greater responsibility, proactivity, confidence, problem-solving skills and autonomy. In terms of the psychoeducational strategies used in the program, emphasis goes to the problem-solving technique, role-playing, videos, peer mentorship, and modeling (lay led model).
Conclusion: The results of the program showed that the youths built skills that fostered their autonomy. The changes observed in the youths on taking on the role of mentors point to the effectiveness of this strategy and its potential for children with chronic conditions.
Downloads
Published
How to Cite
Issue
Section
License
Cogitare Enfermagem reserves the right to make normative, orthographic, and grammatical changes to the published article to maintain the cultured standard of the language, while respecting the authors' style.
The published study is the sole responsibility of the author(s), and Cogitare Enfermagem is exclusively responsible for evaluating the manuscript as a scientific publication vehicle. Revista Cogitare Enfermagem is not responsible for any violations of Law No. 9,610/1998, the Brazilian Copyright Law.
Cogitare Enfermagem allows the author to hold the copyright of articles accepted for publication, without restrictions.
The articles published are licensed under the Creative Commons license CC BY 4.0 Creative Commons - Attribution 4.0 International - CC BY 4.0 - The attribution adopted by Cogitare Enfermagem is permitted:
- Share - copy and redistribute the material in any media or format.
- Adapt - remix, transform and build upon the material for any purpose, even commercially.
- Attribution - You must give proper credit, provide a link to the license, and indicate if changes have been made. You may do this in any reasonable way, but not in a way that suggests that the licensor endorses it or approves of its use.
- No additional restrictions - You may not apply legal terms or technological measures that legally restrict others from doing something that the license allows.
