PERCEPTION OF THE FAMILY CAREGIVER REGARDING PROBLEMS FACED BY CHILDREN IN RELATION TO THEIR DIAGNOSIS OF HIV/AIDS

Authors

  • Márcia Marcos de Lara
  • Giovana Calcagno Gomes Universidade Federal do Rio Grande.
  • Camila Magroski Goulart Nobre Universidade Federal do Rio Grande.
  • Bianca Contreira de Jung Universidade Federal do Rio Grande.
  • Aline Rodrigues Costa Universidade Federal do Rio Grande
  • Eloisa da Fonseca Rodrigues Universidade Federal do Rio Grande

DOI:

https://doi.org/10.5380/ce.v22i4.50882

Keywords:

Acquired Immunodeficiency Syndrome, HIV, Child, Family, Nursing.

Abstract

This study aimed to investigate the perception of the family caregiver regarding the problems faced by the child in relation to her diagnosis of Human Immunodeficiency Syndrome. A qualitative, exploratory and descriptive study was undertaken in a Day Hospital which is a center of excellence in the South of Brazil, in the second semester of 2014. The participants were 10 family caregivers of children attended in the service. The data were collected through semistructured interviews and underwent content analysis. The results emphasized the following as problems faced by the family caregiver: the need for frequent inpatient treatment, being the only person with the virus in the family, suffering prejudice within the family and at school, presenting growth delays and psychological problems. It is necessary for nurses to take responsibility for our educational role with these families so as to help them develop effective strategies for caring for the child.

Author Biographies

Giovana Calcagno Gomes, Universidade Federal do Rio Grande.

Doutora em Enfermagem. Docente da Escola de Enfermagem e do Programa de Pós-graduação da FURG. Rio Grande/RS. Rio Grande do Sul. Brasil

Camila Magroski Goulart Nobre, Universidade Federal do Rio Grande.

Graduada em Enfermagem pela Universidade Federal do Rio Grande (2014). Especialista na Atenção à Saúde Cardiometabólica do Adulto- FURG (2016). Mestranda pelo Programa de Pós Graduação em Enfermagem da FURG. Bolsista CAPES. Integrante do Grupo de Estudos e Pesquisas em Enfermagem na Saúde da Criança e do Adolescente - GEPESCA.

Bianca Contreira de Jung, Universidade Federal do Rio Grande.

Enfermeira. Mestre em Ciências pelo Programa de Pós-Graduação da Faculdade de Enfermagem da Universidade Federal de Pelotas (PPGEnf).  Professora Substituta da Universidade Federal do Rio Grande. Rio Grande/RS, Brasil

Aline Rodrigues Costa, Universidade Federal do Rio Grande

Enfermeira. Mestranda do PPGENF-FURG. Bolsista CAPES. Rio Grande. Rio Grande do Sul. Brasil.

Eloisa da Fonseca Rodrigues, Universidade Federal do Rio Grande

Enfermeira. Mestre em Enfermagem. Doutoranda do Programa de Pós-graduação em Enfermagem (FURG). Rio Grande/RS, Brasil.

Downloads

Published

2017-11-29

How to Cite

de Lara, M. M., Gomes, G. C., Nobre, C. M. G., de Jung, B. C., Costa, A. R., & Rodrigues, E. da F. (2017). PERCEPTION OF THE FAMILY CAREGIVER REGARDING PROBLEMS FACED BY CHILDREN IN RELATION TO THEIR DIAGNOSIS OF HIV/AIDS. Cogitare Enfermagem, 22(4). https://doi.org/10.5380/ce.v22i4.50882

Issue

Vol. 22 No. 4 (2017)

Section

ORIGINAL ARTICLE

License

Cogitare Enfermagem reserves the right to make normative, orthographic, and grammatical changes to the published article to maintain the cultured standard of the language, while respecting the authors' style.

The published study is the sole responsibility of the author(s), and Cogitare Enfermagem is exclusively responsible for evaluating the manuscript as a scientific publication vehicle. Revista Cogitare Enfermagem is not responsible for any violations of Law No. 9,610/1998, the Brazilian Copyright Law.

Cogitare Enfermagem allows the author to hold the copyright of articles accepted for publication, without restrictions.

The articles published are licensed under the Creative Commons license CC BY 4.0 Creative Commons - Attribution 4.0 International - CC BY 4.0 - The attribution adopted by Cogitare Enfermagem is permitted:

  • Share - copy and redistribute the material in any media or format.
  • Adapt - remix, transform and build upon the material for any purpose, even commercially.
  • Attribution - You must give proper credit, provide a link to the license, and indicate if changes have been made. You may do this in any reasonable way, but not in a way that suggests that the licensor endorses it or approves of its use.
  • No additional restrictions - You may not apply legal terms or technological measures that legally restrict others from doing something that the license allows.